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Haddayr Copley-Woods [userpic]

PLUCKY CRIPPLE DOESN'T LET LACK OF BINGO CARD STOP HER!

February 2nd, 2010 (10:36 pm)

EDITED TO ADD: the updated card is here:
http://haddayr.livejournal.com/604179.html

Okay, kids. What did I miss? (probably crossposted, I imagine):




VISUAL DESCRIPTION:

HEADING TO CARD: Are you writing an article that profiles or even tangentially involves a disabled
person? Make it easy on yourself: string together these words and phrases with a few voyeuristic references to the person's body parts, and call it a day!

BODY OF CARD:
She didn't let her disability stop her!
Brave
Inspiration
Will never see his children's faces
Courageous battle
Confined to a wheelchair
Then tragedy struck/her dreams were shattered/the unimaginable happened
Forced to use [mobility device]
Can only communicate through [communication device]
Cheerful/ Never let it get her down/ Positive attitude
Special
He has overcome his disability!
Defying overwhelming odds
She "suffers from" [impairment]
Determination
WHAT AM I MISSING?

Comments

Posted by: Samantha Henderson (samhenderson)
Posted at: February 3rd, 2010 04:36 am (UTC)

Something about being lucky to be disabled because it let them do something better.

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 3rd, 2010 04:42 am (UTC)

"His disability was actually a blessing"

Posted by: destroyer of clocks (jocelina)
Posted at: February 3rd, 2010 04:37 am (UTC)

What about "devoted/selfless/etc. partner"? That seems like a common one, too.

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 3rd, 2010 04:43 am (UTC)
walk

"Her husband was a devoted, selfless saint"

like janradder, but with less sex!

Posted by: Rachel Swirsky (rachel_swirsky)
Posted at: February 3rd, 2010 05:22 pm (UTC)

What? I love this icon.

And this card also.

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 3rd, 2010 05:29 pm (UTC)
walk

Made for me by the awesome callunav. It's exactly how I walk!

Posted by: sacwentie (sacwentie)
Posted at: February 3rd, 2010 09:15 pm (UTC)

Oh, I need to visit again soon. I didn't know you were now waving your arms around like that!

Posted by: timprov (timprov)
Posted at: February 3rd, 2010 04:50 am (UTC)

The fact that bingo cards are 5x5?

Gotta have something funny for the free center spot.

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 3rd, 2010 04:59 am (UTC)

Oh, thank you!

I was looking at it, wondering why there was no center space, and that is why.

Can I blame MS for my bad math?

Posted by: Naomi (naomikritzer)
Posted at: February 3rd, 2010 05:09 am (UTC)

"Differently abled" or some other saccharine euphemism for disability?

Posted by: Michael Merriam (mmerriam)
Posted at: February 3rd, 2010 02:24 pm (UTC)
Blind

Yes. This one.

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 3rd, 2010 04:30 pm (UTC)

YESSS

Posted by: Naomi (naomikritzer)
Posted at: February 3rd, 2010 05:11 am (UTC)

And I think "Inspiration!" should be the center square.

Posted by: Naomi (naomikritzer)
Posted at: February 3rd, 2010 05:13 am (UTC)

When God closes a door, He opens a window!
or
God never gives you more than you can handle. (Except when he gives you cancer, and it makes you dead.)
or
Any other pluckily religious phrase.

Posted by: baronnemelisend (baronnemelisend)
Posted at: February 3rd, 2010 05:23 am (UTC)

Yes, exactly.

Posted by: witchsistah (witchsistah)
Posted at: February 3rd, 2010 12:20 pm (UTC)

When God closes a door, He opens a window!

So you can push dumb motherfuckers through it?

Posted by: Michael Merriam (mmerriam)
Posted at: February 3rd, 2010 02:25 pm (UTC)
Blind

I'd vote for the second one. It seems to be the one I get all the time.

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 3rd, 2010 04:32 pm (UTC)

I get "God never gives you more than you can handle" in reference to Arie all the time.

I've heard it so much that I have a stock phrase, my gift to you this morning: "Really? Explain suicide. And child abuse."

You have to add the child abuse otherwise they'll say "people who commit suicide don't give it up to God," but if you mention child abuse they back slowly away.

Posted by: baronnemelisend (baronnemelisend)
Posted at: February 3rd, 2010 05:22 am (UTC)

Don't forget the whole faith-based angle.

Posted by: Clint Harris (wendigomountain)
Posted at: February 3rd, 2010 06:48 am (UTC)

Your bingo card is inspirational!

Ow! Fuck! That hurt!

Posted by: witchsistah (witchsistah)
Posted at: February 3rd, 2010 12:04 pm (UTC)
Damn you!

Didn't you know you existed to make me feel better about my life and give me someone to pity inspire me?!

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 3rd, 2010 04:33 pm (UTC)
Re: Damn you!
laughing

HA

I just recorded a rather sarcastic and snarky etiquette guide for dealing with disabled people for MPR, and my editor thinks it will probably piss people off, and I think this is the reason.

Also, if I may be permitted to quite Alice Walker: "White people think the world is governed by their intentions."

Posted by: Marissa Lingen (mrissa)
Posted at: February 3rd, 2010 12:11 pm (UTC)

"Thought she would never get to ______"
"Through the miraculous assistance of [something completely non-miraculous"

Posted by: Naomi (naomikritzer)
Posted at: February 3rd, 2010 03:04 pm (UTC)

Ooh, I like the miraculous assistance of (a guide dog, adaptive technology that has existed for years, etc.)

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 3rd, 2010 04:34 pm (UTC)

YES!

I am so glad that I didn't realize the actual size of a bingo card so that I have lots of room to add these.

Posted by: Julia (skogkatt)
Posted at: February 3rd, 2010 01:35 pm (UTC)

Where is the tragedy? "Tragically she was forced to [go on living through the miracle of being human and having access to useful tools]"

Edit: Oh wait, that's totally there. Sorry. I fail at reading. Though, I think possibly tragedy and the unimaginable happening and the dreams shattering might even deserve separate spaces.

Edited at 2010-02-03 01:41 pm (UTC)

Posted by: Naomi (naomikritzer)
Posted at: February 3rd, 2010 03:05 pm (UTC)

"Refused to give up" or "refused to give in." Some phrasing that makes it sound like disease or disability is something you can just, you know, refuse like an unwanted package at the post office.

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 3rd, 2010 04:35 pm (UTC)

YES

Posted by: Naomi (naomikritzer)
Posted at: February 3rd, 2010 03:06 pm (UTC)

Also, it's hard to put this into a pithy Bingo Square phrase, but something that makes it clear the reporter can't tell legitimate cutting edge treatment from woo-based pseudoscience and wishes to lionize the individual being written about for trying EVERYTHING no matter how stupid, especially if the snake oil had some sort of horrible side effect that the person "bravely endured."

Posted by: geniusofevil (geniusofevil)
Posted at: February 3rd, 2010 04:15 pm (UTC)

plucky. and I agree, you need something really awesome for the center square

Posted by: thesaucernews (thesaucernews)
Posted at: February 3rd, 2010 04:57 pm (UTC)

This could be a drinking game for local news packages. Every time one of these phrases come up, you'd take one slug, unless the story's about a kid, then you take two (and three if it's one of Jerry's Kids.) That would be the best show ever.

Posted by: Magenta (magentamn)
Posted at: February 3rd, 2010 05:02 pm (UTC)

I'm not sure how this would fit, but one I hate, hate, hate is the New Age types who say things like "You must have attracted this to yourself" or "You need this for your spiritual development" or "It must be your karma".

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 3rd, 2010 05:09 pm (UTC)

This one is aimed at reporters, but there is another card lurking in the wings of stupid shit people say to people with disabilities.

There are two great ones on invisible disabilities, but they're missing your suggestion:

http://disabledfeminists.com/2009/11/02/invisible-illness-and-disability-bingo-1-0/

http://1.bp.blogspot.com/_t85IBdvYzDk/SfoST8eN-8I/AAAAAAAAAEg/aQm-1d4qNJk/s1600-h/annaham-iib2.gif

Posted by: R. Francis Smith (rfrancis)
Posted at: February 4th, 2010 03:31 am (UTC)
cane

I was going to complain about how the first one didn't have something along the lines of "oh, yeah, I get dizzy sometimes, too!" but LO AND BEHOLD first thing on the second card. Sweet!

My "favorite: one for stupid things people say (well, after the one above) is, "Being fat shouldn't get you a disabled parking permit" or the like, as if someone being fat means that nothing else could possibly trouble them.

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 4th, 2010 03:34 am (UTC)

Everyone knows that fat has magical powers that makes you immune to all disease and disability.

Tsk.

Posted by: Trouble (ccjohn)
Posted at: February 4th, 2010 02:14 am (UTC)
off-topic
sinatra

Haddayr just wanted to be sure you saw this. I got it as Straight Dope from the bowels of Big Pharma.

Let's see if I can cut and paste it:

Lancet formally retracts paper linking vaccine to autism.

ABC World News (2/2, story 7, 0:30, Sawyer) reported that "one of the world's most respected medical journals," The Lancet, is "formally retracting an article that...sparked a fierce debate." The "1998 study...linked the vaccine for mumps, measles and rubella to autism," which "led to a drop in vaccinations and a jump in measles cases," the CBS Evening News (2/2, story 9, 0:30, Couric) reported. But, "25 studies in all have found no link between the vaccine and autism."

The move "is part of a reassessment that has lasted for years of the scientific methods and financial conflicts of Dr. Andrew Wakefield," whose "research showed that the...vaccine may be unsafe," the New York Times (2/3, Harris) reports. Last week, "a British medical panel concluded...that Dr. Wakefield has been dishonest, violated basic research ethics rules, and showed a 'callous disregard' for the suffering of children involved in his research." A spokesman for the CDC said the retraction "builds on the overwhelming body of research...that concludes there is no link between MMR vaccine and autism."

The Washington Post (2/3, Kelland) reports, "The Lancet said that after the" panel's "ruling, it was clear that parts of Wakefield's paper were wrong." The journal "highlighted, for example, assertions that investigations of children for the study were 'approved' by the local ethics committee." Richard Horton, editor in chief of The Lancet, said the journal was especially concerned that Wakefield's study specifically chose certain children to participate rather than testing those who arrived at the hospital as described in the study, the Wall Street Journal (2/3, Wang) reports.

The AP (2/3) reports, "The retraction...comes a day after a competing medical journal, BMJ, issued an embargoed commentary calling for The Lancet to formally retract the study." The BMJ "said once the study" was published, "the arguments were considered by many to be proven and the ghastly social drama of the demon vaccine took on a life of its own."

"Despite multiple subsequent studies that have refuted the link, vaccination rates have remained lower than they were before" Wakefield's study, the Los Angeles Times (2/2, Maugh) reported. BMJ editor Dr. Fiona Goodless said the retraction "will help restore faith in" the vaccine "and in the integrity of the scientific literature."

From something called the Drug Information Association -- maybe they put them together for civilians like us too. But God am I glad to be rid of this BS. fengi posted some counter-reaction from the Huffington Post, which I am beginning to dislike intensely. But this dirtbag -- almost definitely has created sick kids who didn't need to be.

Posted by: Rae (kittenrae)
Posted at: February 5th, 2010 07:21 am (UTC)
Re: off-topic

omg this is totally what I was talking about.

Posted by: Trouble (ccjohn)
Posted at: February 5th, 2010 03:11 pm (UTC)
Daily Drug Information Briefings
john

Yeah. Not just a lying weasel, but someone who put ten years' worth of kids at risk -- like we don't have enough risk! And he amplified this distrust-of-vaccination culture, which has killed people and didn't need amplifying. Haddayr, the quote came from something called the Drug Information Association's "DIA Daily," which uses some service called "Custom Briefings." They have not just newspaper stuff but in-depth trade stuff. I know a lot of people visit this page who are a part of the autism-spectrum-affected community, and please forgive me if I use inappropriate terminology because I'm new to this. But I'd be happy to forward to you, or any friends, the original email -- that's how you get the briefings -- from my close friend who works at Merck. Big Pharma has its problems, but most of the people who work for the sector are good people, and they have saved many lives. It may be possible for regular folks to get these briefings. My nephew, as Haddayr knows, is severely disabled on the autism spectrum. A real good reason to get tight with Pharma is Phase I, II, III, IV trials -- if you work the network you can get your child or relative or friend enrolled. There is a lot of REAL science being done.

Btw Haddayr you inspired me. I'm gonna create a chart called, "Talking to Older People." Example: "ya want some help setting up that Wii we gave ya for Christmas?"

A. "Why yes, that'd be great."
B. "Do we look like we're stupid?"
C. "Do you always have to be such a know-it-all?"
D. "John just let us handle things in peace, PLEASE!"
E. "What're you trying to do, make us feel like we don't live in our own house?"

You wonder, "how can people come up with ways to take offense at every single thing you say?" Then I realized, "hey! they ARE playing with the Wii! they're using it to Take Potshots At John! fucking thing doesn't even need to be turned on!"

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 5th, 2010 03:55 pm (UTC)
Re: Daily Drug Information Briefings

Sure, I'd be interested in that email.

And I don't know whether to laugh or cry at the Wii scene. Sigh.

Posted by: Trouble (ccjohn)
Posted at: February 5th, 2010 04:30 pm (UTC)
Re: Daily Drug Information Briefings

Can you message me a good email to use?

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 5th, 2010 04:42 pm (UTC)
Re: Daily Drug Information Briefings

It's the only email I've got: my first name at geemail etc.

Posted by: MsWildthyme (yuxonomei)
Posted at: February 4th, 2010 11:04 am (UTC)

Oooh, this reads just like a summary of 'What Katie Did.'!

Posted by: Rae (kittenrae)
Posted at: February 5th, 2010 07:20 am (UTC)

lmfao. I am in love with you Haddy. Forevers and evers. And when I saw about the douchebag who tampered with the autism evidence I wanted to crawl through the TV screen and strangle him. You are awesome.

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 5th, 2010 03:42 pm (UTC)

What an incredibly nice post. Thank you.

Posted by: Rae (kittenrae)
Posted at: February 5th, 2010 04:45 pm (UTC)

Np! I figure it's about as good as reaching through a computer screen to give you a hug! :)

Posted by: Sasha_feather (sasha_feather)
Posted at: February 13th, 2010 04:00 am (UTC)

This post has been included in a link round-up at [community profile] access_fandom. Thank you!

Edited at 2010-02-13 04:07 am (UTC)

Posted by: Haddayr Copley-Woods (haddayr)
Posted at: February 13th, 2010 02:43 pm (UTC)
typing wheelchair

Oh, dear; that means I have to actually finish it! I got some great suggestions but then I was frantically preparing for a client presentation, which was yesterday in another city. I'll be sure to put up the final version sometime this weekend!

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